{"id":298,"date":"2023-10-03T19:42:04","date_gmt":"2023-10-03T17:42:04","guid":{"rendered":"https:\/\/www.agnieszkajaworek.com\/?page_id=298"},"modified":"2026-01-04T22:34:00","modified_gmt":"2026-01-04T21:34:00","slug":"sanfilippo","status":"publish","type":"page","link":"https:\/\/www.agnieszkajaworek.com\/en\/sanfilippo\/","title":{"rendered":"SANFILIPPO"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"298\" class=\"elementor elementor-298\">\n\t\t\t\t\t\t\t<div class=\"elementor-element elementor-element-615c508 e-flex e-con-boxed e-con e-parent\" data-id=\"615c508\" data-element_type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;content_width&quot;:&quot;boxed&quot;}\" data-core-v316-plus=\"true\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-330d6b3 elementor-widget elementor-widget-heading\" data-id=\"330d6b3\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.16.0 - 20-09-2023 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h3 class=\"elementor-heading-title elementor-size-default\">SANFILIPPO<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a9717c6 elementor-widget elementor-widget-text-editor\" data-id=\"a9717c6\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.16.0 - 20-09-2023 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p><strong>NEON | 160 X 55 X 55 CM | 2019<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-18899c9 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"18899c9\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.16.0 - 20-09-2023 *\/\n.elementor-widget-divider{--divider-border-style:none;--divider-border-width:1px;--divider-color:#0c0d0e;--divider-icon-size:20px;--divider-element-spacing:10px;--divider-pattern-height:24px;--divider-pattern-size:20px;--divider-pattern-url:none;--divider-pattern-repeat:repeat-x}.elementor-widget-divider .elementor-divider{display:flex}.elementor-widget-divider .elementor-divider__text{font-size:15px;line-height:1;max-width:95%}.elementor-widget-divider .elementor-divider__element{margin:0 var(--divider-element-spacing);flex-shrink:0}.elementor-widget-divider .elementor-icon{font-size:var(--divider-icon-size)}.elementor-widget-divider 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.gallery-item,.elementor-image-gallery .gallery.gallery-columns-9 .gallery-item,.elementor-image-gallery .gallery.gallery-columns-10 .gallery-item{max-width:100%}}<\/style>\t\t<div class=\"elementor-image-gallery\">\n\t\t\t<div id='gallery-1' class='gallery galleryid-298 gallery-columns-3 gallery-size-medium_large'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon portrait'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"68b3bc2\" data-elementor-lightbox-title=\"Sanfilippo, neon, 160 x 55 x 55 cm, 2019\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MjM2LCJ1cmwiOiJodHRwczpcL1wvd3d3LmFnbmllc3prYWphd29yZWsuY29tXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDIzXC8xMFwvYWduaWVzemthX2phd29yZWtfbmVvbl9zYW5maWxpcHBvX2NvbnRlbXBvcmFyeV9hcnRfMy53ZWJwIiwic2xpZGVzaG93IjoiNjhiM2JjMiJ9\" href='https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3.webp'><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1152\" src=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3-768x1152.webp\" class=\"attachment-medium_large size-medium_large\" alt=\"Sztuka wsp\u00f3\u0142czesna\" srcset=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3-768x1152.webp 768w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3-200x300.webp 200w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3-683x1024.webp 683w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3-8x12.webp 8w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_3.webp 1024w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon portrait'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"68b3bc2\" data-elementor-lightbox-title=\"Sanfilippo, neon, 160 x 55 x 55 cm, 2019\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MjM1LCJ1cmwiOiJodHRwczpcL1wvd3d3LmFnbmllc3prYWphd29yZWsuY29tXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDIzXC8xMFwvYWduaWVzemthX2phd29yZWtfbmVvbl9zYW5maWxpcHBvX2NvbnRlbXBvcmFyeV9hcnRfMi53ZWJwIiwic2xpZGVzaG93IjoiNjhiM2JjMiJ9\" href='https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2.webp'><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1152\" src=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2-768x1152.webp\" class=\"attachment-medium_large size-medium_large\" alt=\"Sztuka Wsp\u00f3\u0142czesna\" srcset=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2-768x1152.webp 768w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2-200x300.webp 200w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2-683x1024.webp 683w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2-8x12.webp 8w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_2.webp 1024w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon portrait'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"68b3bc2\" data-elementor-lightbox-title=\"Sanfilippo, neon, 160 x 55 x 55 cm, 2019\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MjM0LCJ1cmwiOiJodHRwczpcL1wvd3d3LmFnbmllc3prYWphd29yZWsuY29tXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDIzXC8xMFwvYWduaWVzemthX2phd29yZWtfbmVvbl9zYW5maWxpcHBvX2NvbnRlbXBvcmFyeV9hcnRfMS53ZWJwIiwic2xpZGVzaG93IjoiNjhiM2JjMiJ9\" data-elementor-lightbox-description=\"\" href='https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1.webp'><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1152\" src=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1-768x1152.webp\" class=\"attachment-medium_large size-medium_large\" alt=\"Sztuka wsp\u00f3\u0142czesna\" srcset=\"https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1-768x1152.webp 768w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1-200x300.webp 200w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1-683x1024.webp 683w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1-8x12.webp 8w, https:\/\/www.agnieszkajaworek.com\/wp-content\/uploads\/2023\/10\/agnieszka_jaworek_neon_sanfilippo_contemporary_art_1.webp 1024w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/a>\n\t\t\t<\/div><\/figure>\n\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ed4270e elementor-widget elementor-widget-text-editor\" data-id=\"ed4270e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Sanfilippo, a word that sounds like the name of a beautiful island or Italian town, is associated with something nice and safe. It is a rare genetic disease, causing deadly brain damage - mucopolysaccharidosis III. Defined as a children\u2019s disease, because most patients never reach maturity. The condition allows the child to develop properly until approx. 3-4 years of age, and then gradually takes away all the abilities they have acquired, such as hearing, speech and the ability to walk. Finally, patients with Sanfilippo die around the age of 15. There are around 7000 rare diseases, out of which up to 50% affect children. No more than 400 diseases from this category have been approved for supportive therapy. So far, medicine has been unable to find any cure, so it is common to apply only limited palliative treatment. However, recently medical research has achieved a promising breakthrough with real hopes for the future. Sanfilippo was done for Ada\u015b and Lea, who were diagnosed with the disease in January 2016. The neon form was inspired by two jellyfish which, overlapping each other, formed a blue and red composition. I came across this photo while reading about terminal diseases. Medusa in the photo was hard to distinguish, as well as the disease from the body. The project is presented together with the Fumu's song\u00a0<a href=\"https:\/\/soundcloud.com\/fumu00\/gelefish-102-exhibition\" target=\"_blank\" rel=\"noopener\">Gelefish<\/a>. I did not want the disease aspect to be dominant, or at least not the only one, I wanted the sun to be in it, as in the siblings for whom it was created. Sanfilippo does not exist in the air, but in specific people who live their short lives with all its aspects. By supporting\u00a0<a href=\"https:\/\/sanfilippo.org.pl\/pl\/home-2\/\" target=\"_blank\" rel=\"noopener\">the Sanfilippo Foundation<\/a>\u00a0you can help Ada\u015b, Lea and other children suffering from MPS or a similar disease.<\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-625d99e elementor-widget elementor-widget-spacer\" data-id=\"625d99e\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.16.0 - 20-09-2023 *\/\n.elementor-column 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[&hellip;]<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-298","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SANFILIPPO - Agnieszka Piotrowska<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.agnieszkajaworek.com\/en\/sanfilippo\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SANFILIPPO - Agnieszka Piotrowska\" \/>\n<meta property=\"og:description\" content=\"SANFILIPPO NEON | 160 X 55 X 55 CM | 2019 Sanfilippo, s\u0142owo kt\u00f3re brzmi jak nazwa pi\u0119knej wyspy lub w\u0142oskiego miasteczka, kojarzy si\u0119 z czym\u015b mi\u0142ym i bezpiecznym. 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